Living with chronic cancer

Find your way through the information based on your situation

Content:

Being told that your cancer is ‘incurable’ is a medical assessment – not a final verdict. Many patients have shown that it is possible to live long and well, and in some cases even turn the disease around, despite a serious prognosis.

This guide is for you who have maintained hope, and who seek all the tools that can strengthen you in the fight for your life and your quality of life.

1. Conventional treatment alone

Uhelbredelig symboliseret ved del af vandløb, sten og græstotter.

On this path, the goal is to use the best tools of the established healthcare system to ensure you the highest possible quality of life.

The focus is on advanced symptom control, life-prolonging treatments, and a close dialogue with your palliative team, so you can live as active and meaningful a life as possible.

General info

Guide til sitet symboliseret ved billede af væg med bøger i reol. Disse står utydeligt undtagen inde i silhuet af to ansigter der ser mod hinanden.
  • Blood tests: A guide to understanding your blood test results, so you can continuously monitor your body’s condition and the effect of your treatment.
  • Metastases: Description of what metastases are, the concern about recurrence, the various symptoms in the body, how metastases are diagnosed, as well as the available treatment options.
  • Radiation therapy: In some situations, this may be relevant for pain relief or to shrink a tumor that is causing significant discomfort.
  • Port-a-Cath (venous catheter): Information for you receiving long-term systemic treatment and who have, or are to have, a ‘port’ implanted.
  • Side effects – Chemo and Radiation – minimize: If you experience side effects in connection with your treatment, you can find guidance to alleviate most of them here. Use the search function if necessary.
  • Systemic treatmentsImmunotherapytargeted cancer treatment, and hormone therapy are also options it may be relevant to know about, as these are often the primary weapons in metastatic disease.
  • Specific local treatments: Overview of a range of possible treatments that can be significantly life-prolonging and increase quality of life. For example, PIPAC treatment.
  • Pain management: Good pain control is not giving up – it is a prerequisite for having the energy to fight. Gain knowledge about the effective methods that can give you the best possible daily life.

Prepare for meeting

Guide til sitet symboliseret ved en pc med blå skærm og en seddel tapet på, hvor der står Briefing
  • The Decision: Prepare for each meeting with the doctor. Take note if you experience side effects from your treatment (that can wait until the next meeting). Reflect on how the treatment is progressing.
  • Responsibility and loss of control: Have we handed over control of our health? Discussion of the paradox of high legal responsibility and a complete lack of health-related responsibility.
  • Second opinion/ treatment abroad: If you feel uncertain about whether the correct diagnosis has been made or the optimal treatment has been proposed, a second opinion can be a good solution if it is financially within reach.
  • Experimental treatment: When the cancer recurs, participation in clinical trials can provide access to the newest forms of treatment. Understand what it entails and how you can be considered.

Strengthen body and immune system

Guide til sitet - styrk immunforsvar symboliseret ved mikroskopisk billede af bakterier i røde nuancer.

Harmony and mental strength

Guide til sitet - harmoni og styrke symboliseret ved en stablet stenbunke med hav i baggrunden.
  • General breathing: A simple method for managing pain, anxiety, and discomfort during treatment.
  • Tapping: A tool to reduce anxiety and emotional discomfort.
  • Palliative care: See this as a specialized team of experts whose sole purpose is to increase your quality of life and give you the strength to live as well as possible – every single day. Saying yes to this help is life-affirming and does not define your stage.
  • Emotions: Support for managing the shock, anger, and powerlessness that often accompany the news that the cancer has returned.
  • Logbook: Consider tracking your symptoms, treatment, and progress. Also, a powerful tool for medical consultations and in everyday life.
  • Post-traumatic growth (PTG): A recurrence is a new crisis. Read about how this difficult experience can also be used to find new strengths and a deeper perspective on life.
  • Near-death experiences: Readings on spiritual aspects. What awaits us after life. Some have experienced the beyond and return to life strengthened. Without the slightest fear of death. Reading about these has been of decisive importance to me personally.
  • Cancer stories from survivers: It can be a great comfort and help to read stories of cancer survivors who have the same type of cancer as yourself. Find your cancer type in the overview on the page.
  • Book reviews: Literature suitable for cancer patients to provide hope, good advice, and guidance.
  • Literature: Find books that can provide support and comfort.

Practical help and community

Praktisk hjælp symboliseret ved et billede, hvor seks hænder alle griber om en andens håndled, så der dannes en sekskant. Græs som baggrund.

Parents with cancer

Guide til sitet. Forældre til mindreårige børn symboliseret ved en kvinde der ses i modlys med et barn hun bærer på ryggen. Er i en have med græsplæne.

Living with an incurable cancer as a parent is an ongoing and emotionally demanding task. The focus is on creating as many good moments as possible, preparing the children for an uncertain future, and finding the strength to be present, even when it is hardest. These articles are written to support you in that process:

  • Young children: Good advice on how and when to talk to your children about the illness.
  • Relatives: Although you are the patient, you can find perspectives here on how your family and your children experience the situation.
  • Emotions: Tools for managing your own emotions so you can be a more present parent.
  • Worst case: Suggestions on how to ensure—under all circumstances—that you remain in your children’s lives in the future.
  • Social relations: Inspiration for managing family dynamics and asking for help from your network.
  • Stories about cancer for children: Get help explaining the situation to your children or grandchildren here. There are stories for most types of family relationships.

Child/ Young person with cancer

Guide til sitet - Barn eller ung med kræft symboliseret ved to glade børn der holder om hinanden.

When a child or young person lives with an incurable cancer, the whole family’s world is changed.

In this truly difficult time, all focus is on the child’s quality of life, on providing relief and creating meaningful, loving moments together. Here is a collection of articles that offer support to the family in an unbearable situation.

Conclusion

Uhelbredelig symboliseret ved del af vandløb, sten og græstotter.

A ‘chronic’ diagnosis is a prognosis – not your destiny. History is full of examples of people who have survived cancer for many years and against all odds. By taking an active part in your treatment, strengthening your body, and maintaining an indomitable hope, you give yourself the absolute best chance of creating your own positive outcome.

Life is only over when you decide it is. Since you are reading this, I know you are ready to fight.

I wish you all the best.

See also Alternative Treatments – Overview

What you read on “Jeg har Kræfter” is not a recommendation. Seek professional guidance.

Living with chronic cancer
2. Conventional and alternative

Find your way through the information based on your situation

Content:

Being told that your cancer is ‘incurable’ is a medical assessment – not a final verdict. Many patients have shown that it is possible to live long and well, and in some cases even turn the disease around.

This guide is for you who have maintained hope, and who are seeking all the tools that can strengthen you in the fight for your life and your quality of life.

2. Conventional and complementary/ alternative treatment

Uhelbredelig kræft symboliseret ved gren med nærbillede af to røde frugter.

On this path, you acknowledge your situation but wish to be active.

The strategy is to use the best conventional treatments to control the disease, while simultaneously implementing a full complementary effort to strengthen your body, weaken the cancer, and improve your quality of life.

It is a proactive approach to living as well as possible, for as long as possible – and perhaps daring to hope for a miracle.

General info

Guide til sitet symboliseret ved billede af væg med bøger i reol. Disse står utydeligt undtagen inde i silhuet af to ansigter der ser mod hinanden.
  • Raidation therapy: Information about treatment, effects, side effects, and possible long-term effects.
  • Port-a-Cath (venous catheter): Information for you receiving long-term systemic treatment and who have, or are to have, a ‘port’ implanted.
  • Side effects – Chemo and Radiation – minimize: If you experience side effects in connection with your treatment, you can find guidance to alleviate most of them here. Use the search function if necessary.
  • Systemic treatments: An overview of immunotherapytargeted therapy, and hormone therapy.
  • Specific local treatments: Overview of a range of possible treatments that can be significantly life-prolonging and increase quality of life. For example, PIPAC treatment.
  • Integrative Oncology: Combines conventional cancer treatment with evidence-based complementary methods. The borderland between conventional and complementary treatment.
  • Metastases: Fundamental knowledge about what metastatic disease is, how it behaves, and what overall treatment principles exist.
  • Pain management: Good pain control is not giving up – it is a prerequisite for having the energy to fight. Gain knowledge about the effective methods that can give you the best possible daily life.
  • Palliative care: See this as a specialized team of experts whose sole purpose is to enhance your quality of life and give you the strength to live as well as possible – every single day. Saying yes to this help is life-affirming and does not define your stage.

Prepare for meeting

Guide til sitet symboliseret ved en pc med blå skærm og en seddel tapet på, hvor der står Briefing
  • The Decision: Prepare for each meeting with the doctor. Take note if you experience side effects from your treatment (that can wait until the next meeting). Reflect on how the treatment is progressing.
  • Responsibility and loss of control: Have we handed over control of our health? Discussion of the paradox of high legal responsibility and a complete lack of health-related responsibility.
  • Experimental treatment: When the cancer recurs, participation in clinical trials can provide access to the newest forms of treatment. Understand what it entails and how you can be considered.
  • Second opinion/ treatment abroad: If you feel uncertain about whether the correct diagnosis has been made or the optimal treatment has been proposed, a second opinion can be a good solution if it is financially within reach.
  • Holistic Clinics, Europe: Overview of clinics and hospitals that have a special focus on treating cancer patients. If you are aware of places not mentioned, I hope to hear from you.
  • Clinics such as Arcadia Praxisklinik or Dr. Vogl, Frankfurt: Recognized and well-reputed clinics that, among other things, have experience with integrative oncology.
  • Praxisgemeinschaft für Zelltherapie, Duderstadt: (A clinic in Duderstadt, Germany, that offers cell-based immunotherapies, primarily dendritic cell therapy, for the treatment of cancer

Strengthen body and immune system

Guide til sitet - styrk immunforsvar symboliseret ved mikroskopisk billede af bakterier i røde nuancer.

Harmony and mental strength

Guide til sitet - harmoni og styrke symboliseret ved en stablet stenbunke med hav i baggrunden.
  • General breathing: A simple method for managing pain, anxiety, and discomfort during treatment.
  • Tapping: A tool to reduce anxiety and emotional discomfort.
  • Emotions: Support for managing the shock, anger, and powerlessness that often accompany the news that the cancer has returned.
  • Logbook: Consider tracking your symptoms, treatment, and progress. Also, a powerful tool for medical consultations and in everyday life.
  • Post-traumatic growth (PTG): A recurrence is a new crisis. Read about how this difficult experience can also be used to find new strengths and a deeper perspective on life.
  • Acupuncture or Reflexology: Select at least one of the therapies that corresponds to the sense that is most important to you.
  • Physical Stimulation and Energy Therapy: It is likely to be beneficial for inner peace and balance to supplement your treatment with one of the sensory approaches that is most in accordance with your sensitivity:
    • Nature and Forest Bathing: Nature has healing powers that can provide peace and recharging when spending time in nature. This is an essential part of holistic well-being.
    • Sound healing: Finding calm by appealing to the senses can be quite effective.
    • Music therapy: A path to inner peace and strength through sound. Music has therapeutic potential to support cancer patients and provide symptom relief.
    • Aromatherapy: Depending on which sense is dominant for you, you can choose a corresponding path to strengthen inner peace and harmony.
  • Forgiveness: If you have strong feelings of bitterness or anger, work through them. Anger takes a toll on your health – not on the person it is directed toward.
  • Near-death experiences: Readings on spiritual aspects. What awaits us after life. Some have experienced the beyond and return to life strengthened. Without the slightest fear of death. Reading about these has been of decisive importance to me personally.
  • Cancer stories from survivers: It can be a great comfort and help to read stories of cancer survivors who have the same type of cancer as yourself. Find your cancer type in the overview on the page.
  • Inspiration and strength: Here is a collection of quotes, stories, and thoughts that can offer a moment of peace and perhaps a new perspective.
  • Book reviews: Literature suitable for cancer patients to provide hope, good advice, and guidance.
  • Literature: Find books that can provide support and comfort.
  • Quality of life and co-responsibility: The experience of having influence over the outcome of one’s cancer treatment can be extremely beneficial.

Practical help and community

Praktisk hjælp symboliseret ved et billede, hvor seks hænder alle griber om en andens håndled, så der dannes en sekskant. Græs som baggrund.

Parents with cancer

Guide til sitet. Forældre til mindreårige børn symboliseret ved en kvinde der ses i modlys med et barn hun bærer på ryggen. Er i en have med græsplæne.

Living with an incurable cancer as a parent is an ongoing and emotionally demanding task. The focus is on creating as many good moments as possible, preparing the children for an uncertain future, and finding the strength to be present, even when it is hardest. These articles are written to support you in that process:

  • Young children: Good advice on how and when to talk to your children about the illness.
  • Relatives: Although you are the patient, you can find perspectives here on how your family and your children experience the situation.
  • Emotions: Tools for managing your own emotions so you can be a more present parent.
  • Worst case: Suggestions on how to ensure—under all circumstances—that you remain in your children’s lives in the future.
  • Social relations: Inspiration for managing family dynamics and asking for help from your network.
  • Stories about cancer for children: Get help explaining the situation to your children or grandchildren here. There are stories for most types of family relationships.

Child/ Young person with cancer

Guide til sitet - Barn eller ung med kræft symboliseret ved to glade børn der holder om hinanden.

When a child or young person lives with an incurable cancer, the whole family’s world is changed.

In this truly difficult time, all focus is on the child’s quality of life, on providing relief and creating meaningful, loving moments together. Here is a collection of articles that offer support to the family in an unbearable situation.

Conclusion

Uhelbredelig kræft symboliseret ved gren med nærbillede af to røde frugter.

Living with a chronic diagnosis and choosing the combined path is about taking control and fighting with all available means. You use the system’s strongest tools to keep the disease at bay, while simultaneously building a resilient body and a strong mind.

You are not defined by your prognosis, but by your will to create the best possible life. Every day is an opportunity to make a difference for your health.

I wish you all the best.

See also Alternative Treatments – Overview

What you read on “Jeg har Kræfter” is not a recommendation. Seek professional guidance.

Living with chronic cancer
3. Alternative alone

Navigate the information based on your situation

Content:

Being told that your cancer is ‘incurable’ is a medical assessment – not a final verdict. Many patients have shown that it is possible to live long and well, and in some cases even turn the disease around. This guide is for you who have maintained hope, and who are seeking the tools that can strengthen you in the fight for your life and your quality of life.

3. Alternative treatment alone

At leve med uhelbredelig kræft symboliseret ved delvis udsprunget blomsterknop af magnolia mod blå himmel.

On this path, you decline the offerings of the conventional system to instead dedicate yourself fully to an alternative strategy. It is an all-encompassing approach where your lifestyle becomes your medicine.

The goal is to change the body’s internal environment so fundamentally that the cancer loses its basis for survival, and the body gets the opportunity to keep the cancer at bay or even heal itself.

General info

Guide til sitet symboliseret ved billede af væg med bøger i reol. Disse står utydeligt undtagen inde i silhuet af to ansigter der ser mod hinanden.
  • Cancertype: Find the type of cancer you have been diagnosed with. If necessary, use the search function (e.g., Breast cancer, Lung cancer, etc.). Here you can read about treatment options, statistics, and prognosis.
  • Metastases: Description of what metastases are, the concern about recurrence, the various symptoms in the body, how metastases are diagnosed, as well as the available treatment options.
  • Specific local treatments: Overview of a range of possible treatments that can be significantly life-prolonging and increase quality of life. For example, PIPAC treatment.

Prepare for meeting

Guide til sitet symboliseret ved en pc med blå skærm og en seddel tapet på, hvor der står Briefing
  • The Decision: Prepare for each meeting with the doctor. Take note if you experience side effects from your treatment (that can wait until the next meeting). Reflect on how the treatment is progressing.
  • Responsibility and loss of control: Have we handed over control of our health? Discussion of the paradox of high legal responsibility and a complete lack of health-related responsibility.
  • Second opinion/ treatment abroad: If you feel uncertain about whether the correct diagnosis has been made or the optimal treatment has been proposed, a second opinion can be a good solution if it is financially within reach.
  • Holistic Clinics, Europe: Overview of clinics and hospitals that have a special focus on treating cancer patients. If you are aware of places not mentioned, I hope to hear from you.
  • Evidence: A discussion of the scientific documentation that is required on almost every occasion, weighed against experience, which is increasingly losing its value.
  • Clinics (Germany) such as Arcadia PraxisklinikDr. Vogl, Frankfurt, or Praxisgemeinschaft für Zelltherapie, Duderstadt: Recognized and well-reputed clinics that, among other things, have experience with treatments that are not available in Denmark.

Strengthen body and immune system

Guide til sitet - styrk immunforsvar symboliseret ved mikroskopisk billede af bakterier i røde nuancer.

Harmony and mental strength

Guide til sitet - harmoni og styrke symboliseret ved en stablet stenbunke med hav i baggrunden.
  • Tapping: A tool to reduce anxiety and emotional discomfort.
  • Emotions: Support for managing the shock, anger, and powerlessness that often accompany the news that the cancer has returned.
  • Logbook: Consider tracking your symptoms, treatment, and progress. Also, a powerful tool for medical consultations and in everyday life.
  • Post-traumatic growth (PTG): A recurrence is a new crisis. Read about how this difficult experience can also be used to find new strengths and a deeper perspective on life.
  • Faith moves mountains – the power of the mind: On the significance of the psyche for healing.
  • Forgiveness: If you have strong feelings of bitterness or anger, work through them. Anger takes a toll on your health – not on the person it is directed toward.
  • Acupuncture or Reflexology: Select at least one of the therapies that corresponds to the sense that is most important to you.
  • Physical Stimulation and Energy Therapy: It is likely to be beneficial for inner peace and balance to supplement your treatment with one of the sensory approaches that is most in accordance with your sensitivity:
    • Nature and Forest Bathing: Nature has healing powers that can provide peace and recharging when spending time in nature. This is an essential part of holistic well-being.
    • Sound healing: Finding calm by appealing to the senses can be quite effective.
    • Music therapy: A path to inner peace and strength through sound. Music has therapeutic potential to support cancer patients and provide symptom relief.
    • Aromatherapy: Depending on which sense is dominant for you, you can choose a corresponding path to strengthen inner peace and harmony.
  • Cancer stories from survivers: It can be a great comfort and help to read stories of cancer survivors who have the same type of cancer as yourself. Find your cancer type in the overview on the page.
  • Near-death experiences: Readings on spiritual aspects. What awaits us after life. Some have experienced the beyond and return to life strengthened. Without the slightest fear of death. Reading about these has been of decisive importance to me personally.
  • Book reviews: Literature suitable for cancer patients to provide hope, good advice, and guidance.
  • Inspiration and strength: Here is a collection of quotes, stories, and thoughts that can offer a moment of peace and perhaps a new perspective.
  • Literature: Find books that can provide support and comfort.
  • Quality of life and co-responsibility: The experience of having influence over the outcome of one’s cancer treatment can be extremely beneficial.

Practical help and community

Praktisk hjælp symboliseret ved et billede, hvor seks hænder alle griber om en andens håndled, så der dannes en sekskant. Græs som baggrund.

Parents with cancer

Guide til sitet. Forældre til mindreårige børn symboliseret ved en kvinde der ses i modlys med et barn hun bærer på ryggen. Er i en have med græsplæne.

Living with an incurable cancer as a parent is an ongoing and emotionally demanding task. The focus is on creating as many good moments as possible, preparing the children for an uncertain future, and finding the strength to be present, even when it is hardest. These articles are written to support you in that process:

  • Young children: Good advice on how and when to talk to your children about the illness.
  • Relatives: Although you are the patient, you can find perspectives here on how your family and your children experience the situation.
  • Emotions: Tools for managing your own emotions so you can be a more present parent.
  • Worst case: Suggestions on how to ensure—under all circumstances—that you remain in your children’s lives in the future.
  • Social relations: Inspiration for managing family dynamics and asking for help from your network.
  • Stories about cancer for children: Get help explaining the situation to your children or grandchildren here. There are stories for most types of family relationships.

Child/ Young person with cancer

Guide til sitet - Barn eller ung med kræft symboliseret ved to glade børn der holder om hinanden.

When a child or young person lives with an incurable cancer, the whole family’s world is changed.

In this truly difficult time, all focus is on the child’s quality of life, on providing relief and creating meaningful, loving moments together. Here is a collection of articles that offer support to the family in an unbearable situation.

Conclusion

At leve med uhelbredelig kræft symboliseret ved delvis udsprunget blomsterknop af magnolia mod blå himmel.

Choosing this path, when faced with an absolutely serious prognosis, is an expression of indomitable hope and a deep belief in the body’s potential.

It is a path that requires total dedication, where you are the primary researcher and strategist in your own life. Every day is an opportunity to strengthen your health and work toward a result that many thought was impossible. You are not just fighting to live with the disease; you are fighting for life itself.

I wish you all the best.

See also Alternative Treatments – Overview

What you read on “Jeg har Kræfter” is not a recommendation. Seek professional guidance.