{"id":32736,"date":"2025-10-07T14:41:49","date_gmt":"2025-10-07T13:41:49","guid":{"rendered":"https:\/\/jegharkraeft.dk\/?p=32736"},"modified":"2026-05-27T18:50:08","modified_gmt":"2026-05-27T17:50:08","slug":"quality-of-life-and-shared-responsibility","status":"publish","type":"post","link":"https:\/\/jegharkraeft.dk\/en\/quality-of-life-and-shared-responsibility\/","title":{"rendered":"Quality of life and shared responsibility with cancer. Quality of life in cancer. Shared responsibility in treatment. Choice of cancer treatment. Patient involvement."},"content":{"rendered":"\n<div class=\"wp-block-group alignfull is-style-section-5 has-contrast-color has-base-background-color has-text-color has-background has-link-color wp-elements-2c44e1bb7a348b56e7599debbe6f6740 has-global-padding is-layout-constrained wp-block-group-is-layout-constrained is-style-section-5--2\" id=\"menu\" style=\"margin-top:0;margin-bottom:0;padding-top:var(--wp--preset--spacing--50);padding-bottom:var(--wp--preset--spacing--50)\">\n<div class=\"wp-block-columns alignwide is-layout-flex wp-container-core-columns-is-layout-ca2dd60b wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\">\n<h2 class=\"wp-block-heading has-custom-int-link-p-sort-1-color has-text-color has-link-color wp-elements-85c9ab605a9af581478ba1bfba8fd611\"><span class=\"ez-toc-section\" id=\"Treatments\"><\/span><a href=\"https:\/\/jegharkraeft.dk\/en\/cancer-treatments-overview\/\">Treatments<\/a><span class=\"ez-toc-section-end\"><\/span><\/h2>\n\n\n\n<div class=\"wp-block-group has-custom-interne-links-color has-text-color has-link-color wp-elements-e31de3c3283cde12b26baf47bbb8d41b has-global-padding is-layout-constrained wp-block-group-is-layout-constrained\">\n<ol class=\"wp-block-list\">\n<li class=\"has-custom-int-link-p-sort-1-color has-text-color has-link-color wp-elements-278292c304ef6e171f6aea5cf56669cb\"><a href=\"#beslutningen\"><mark style=\"background-color:rgba(0, 0, 0, 0)\" class=\"has-inline-color has-custom-her-st-r-du-color\"><\/mark><\/a><a href=\"https:\/\/jegharkraeft.dk\/en\/the-decision-what-kind-of-treatment-is-best\/\"><mark style=\"background-color:rgba(0, 0, 0, 0)\" class=\"has-inline-color has-custom-hvid-tekst-color\">The decision<\/mark><\/a>\n<ul class=\"wp-block-list\">\n<li class=\"has-custom-int-link-p-sort-1-color has-text-color has-link-color wp-elements-77ce93c13eeabb243de6de99787abda6\"><a href=\"https:\/\/jegharkraeft.dk\/en\/responsibility-and-loss-of-control\/\">Responsibility and loss of control<\/a><\/li>\n\n\n\n<li class=\"has-custom-int-link-p-sort-1-color has-text-color has-link-color wp-elements-4ea6093e98817dbc1e326820445ea920\"><a href=\"https:\/\/jegharkraeft.dk\/en\/it-has-to-feel-right\/\">It has to feel right<\/a><\/li>\n\n\n\n<li class=\"has-custom-int-link-p-sort-1-color has-text-color has-link-color wp-elements-4fd1dc4c83e7e056050fe01fdaf640a8\"><a href=\"https:\/\/jegharkraeft.dk\/en\/evidence-vs-experience\/\">Evidence vs. Experience<\/a><\/li>\n\n\n\n<li class=\"has-custom-int-link-p-sort-1-color has-text-color has-link-color wp-elements-9f173d22c985a8bf82fb9f7225dfcf1f\"><a href=\"https:\/\/jegharkraeft.dk\/en\/gemini-censors\/\">Gemini censors<\/a><\/li>\n\n\n\n<li class=\"has-custom-int-link-p-sort-1-color has-text-color has-link-color wp-elements-51c4b2bc4f36bc3667665395ee2f2f42\"><a href=\"https:\/\/jegharkraeft.dk\/en\/integrative-oncology\/\">Integrative oncology<\/a><\/li>\n\n\n\n<li class=\"has-custom-her-st-r-du-color has-text-color has-link-color wp-elements-947da3618eedec09762b3d5fc9e180c9\"><a href=\"#quality-of-life-and-shared-responsibility\">Quality of life and shared responsibility (scroll down)<\/a>\n<ul class=\"wp-block-list\">\n<li class=\"has-custom-int-link-p-sort-1-color has-text-color has-link-color wp-elements-31213e36a816ee66b2fe63794664a98d\"><a href=\"https:\/\/jegharkraeft.dk\/en\/questionnaire-survey\/\">Questionnaire survey<\/a><\/li>\n\n\n\n<li class=\"has-custom-int-link-p-sort-1-color has-text-color has-link-color wp-elements-d0a25dbc2b6bfd4cb1d1f9fa6f1e9afa\"><a href=\"https:\/\/jegharkraeft.dk\/en\/cancer-treatment-guidelines\/\">The treatment guidelines<\/a><\/li>\n\n\n\n<li class=\"has-custom-int-link-p-sort-1-color has-text-color has-link-color wp-elements-32d24c492f88acbec95894a163ee7356\"><a href=\"https:\/\/jegharkraeft.dk\/en\/predict\/\">Predict<\/a><\/li>\n<\/ul>\n<\/li>\n\n\n\n<li class=\"has-custom-int-link-p-sort-1-color has-text-color has-link-color wp-elements-acb11e25d0e686122b892ac25fedd1ff\"><strong><a href=\"https:\/\/jegharkraeft.dk\/en\/placebo-nocebo-effects\/\">Placebo and nocebo effect<\/a><\/strong><\/li>\n<\/ul>\n<\/li>\n\n\n\n<li class=\"has-custom-int-link-p-sort-1-color has-text-color has-link-color wp-elements-8dcc353fc6d93ae356bb7c5c47892139\"><a href=\"https:\/\/jegharkraeft.dk\/en\/traditional-cancer-treatments-overview\/\">Traditional Treatments<\/a><\/li>\n\n\n\n<li class=\"has-custom-int-link-p-sort-1-color has-text-color has-link-color wp-elements-e100c789e604f8dad90ce66c5fa81a14\"><a href=\"https:\/\/jegharkraeft.dk\/en\/alternative-cancer-treatments-overview\/\">Overview of Complementary and Alternative Treatments<\/a><\/li>\n\n\n\n<li class=\"has-custom-int-link-p-sort-1-color has-text-color has-link-color wp-elements-13a96fef9559355f71413816e3bd7231\"><a href=\"https:\/\/jegharkraeft.dk\/en\/repurposed-drugs\/\">Repurposed Drugs<\/a><\/li>\n\n\n\n<li class=\"has-custom-int-link-p-sort-1-color has-text-color has-link-color wp-elements-e99ce1b11440bc8fd843f65147524c92\"><a href=\"https:\/\/jegharkraeft.dk\/kosttilskud-grupperet\/\">Dietary Supplements for Cancer<\/a><\/li>\n\n\n\n<li class=\"has-custom-int-link-p-sort-1-color has-text-color has-link-color wp-elements-8b37ae99af09359ae333291248352c42\"><a href=\"https:\/\/jegharkraeft.dk\/en\/nutrition-and-diet-in-cancer\/\">Nutrition and Diet for Cancer<\/a><\/li>\n\n\n\n<li class=\"has-custom-int-link-p-sort-1-color has-text-color has-link-color wp-elements-ed7f5640cef38c5707e75e96f3df666b\"><a href=\"https:\/\/jegharkraeft.dk\/en\/cancer-protocols\/\">Protocols for Cancer<\/a><\/li>\n\n\n\n<li class=\"has-custom-int-link-p-sort-1-color has-text-color has-link-color wp-elements-b4fa99c2dd7c510de6a070cc25d9b66c\"><a href=\"https:\/\/jegharkraeft.dk\/en\/cancer-as-a-metabolic-disease-warburg-effect-dr-thomas-seyfried-metabolism-warburg-mtor\/\">Block Cancer Growth Pathways<\/a><\/li>\n<\/ol>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-vertically-aligned-center is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:50%\">\n<figure class=\"wp-block-image aligncenter size-full is-resized\"><img loading=\"lazy\" decoding=\"async\" width=\"847\" height=\"818\" src=\"https:\/\/jegharkraeft.dk\/wp-content\/uploads\/2025\/08\/Livskvalitet-og-medansvar2.jpg\" alt=\"Livskvalitet og medansvar symboliseret ved en mandearm der r\u00e6kker frem over en s\u00f8. H\u00e5nden holder et \u00e5bent kompas. Bjerge i baggrunden.\" class=\"wp-image-32735\" style=\"aspect-ratio:3\/2;object-fit:cover;width:550px\" srcset=\"https:\/\/jegharkraeft.dk\/wp-content\/uploads\/2025\/08\/Livskvalitet-og-medansvar2.jpg 847w, https:\/\/jegharkraeft.dk\/wp-content\/uploads\/2025\/08\/Livskvalitet-og-medansvar2-600x579.jpg 600w, https:\/\/jegharkraeft.dk\/wp-content\/uploads\/2025\/08\/Livskvalitet-og-medansvar2-300x290.jpg 300w, https:\/\/jegharkraeft.dk\/wp-content\/uploads\/2025\/08\/Livskvalitet-og-medansvar2-768x742.jpg 768w\" sizes=\"auto, (max-width: 847px) 100vw, 847px\" \/><\/figure>\n<\/div>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group alignfull is-style-default has-global-padding is-layout-constrained wp-container-core-group-is-layout-b040ace0 wp-block-group-is-layout-constrained has-background\" style=\"margin-top:0;margin-bottom:0;padding-top:var(--wp--preset--spacing--60);padding-right:var(--wp--preset--spacing--20);padding-bottom:var(--wp--preset--spacing--60);padding-left:var(--wp--preset--spacing--20);background-image:url(&apos;https:\/\/jegharkraeft.dk\/wp-content\/uploads\/2025\/08\/Livskvalitet-og-medansvar2.jpg&apos;);background-position:44% 36%;background-size:cover;\">\n<div class=\"gb-element-906497af\">\n<h1 class=\"wp-block-heading\"><span class=\"ez-toc-section\" id=\"Quality_of_life_and_shared_responsibility\"><\/span>Quality of life and shared responsibility<span class=\"ez-toc-section-end\"><\/span><\/h1>\n\n\n\n<hr class=\"wp-block-separator has-text-color has-custom-sort-tekst-color has-alpha-channel-opacity has-custom-sort-tekst-background-color has-background\"\/>\n\n\n\n<h4 class=\"wp-block-heading\">Summary of quality of life and shared responsibility <\/h4>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>A documented gap:<\/strong><\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>A questionnaire survey among cancer patients supports a widespread experience: There is a significant gap between the healthcare system&#8217;s standardized treatment pathways and the individual&#8217;s desire for participation, sufficient information, and a focus on quality of life. Nearly half have opted out of or considered opting out of parts of the recommended treatment, primarily due to fear of side effects. <\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>The system&#8217;s inherent barriers:<\/strong><\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>The current approach in the healthcare system has inherent barriers that hinder more individualized treatment. There is a tendency to deprioritize well-documented, non-medical interventions such as exercise, and a one-sided focus on survival statistics often overshadows the patient&#8217;s personal values and desire for quality of life. <\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Building a bridge:<\/strong><\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>The article is a call for a paradigm shift. From a system that treats diagnoses to a real partnership that respects the individual. The way forward involves strengthened dialogue, recognition of an integrative approach, and a culture where shared responsibility is the foundation of treatment.<\/li>\n<\/ul>\n\n\n\n<hr class=\"wp-block-separator has-text-color has-custom-sort-tekst-color has-alpha-channel-opacity has-custom-sort-tekst-background-color has-background\"\/>\n\n\n\n<h2 class=\"wp-block-heading\"><span class=\"ez-toc-section\" id=\"The_gap_between_system_and_individual\"><\/span>The gap between system and individual<span class=\"ez-toc-section-end\"><\/span><\/h2>\n\n\n\n<figure class=\"wp-block-image size-full is-resized\"><img loading=\"lazy\" decoding=\"async\" width=\"960\" height=\"971\" src=\"https:\/\/jegharkraeft.dk\/wp-content\/uploads\/2025\/08\/Livskvalitet-og-medansvar19.jpg\" alt=\"Livskvalitet og medansvar symboliseret ved en kl\u00f8ft mellem to h\u00f8je klipper. Man ser bjerg i baggrunden og bl\u00e5 himmel.\" class=\"wp-image-17940\" style=\"object-fit:cover;width:150px;height:150px\" srcset=\"https:\/\/jegharkraeft.dk\/wp-content\/uploads\/2025\/08\/Livskvalitet-og-medansvar19.jpg 960w, https:\/\/jegharkraeft.dk\/wp-content\/uploads\/2025\/08\/Livskvalitet-og-medansvar19-100x100.jpg 100w, https:\/\/jegharkraeft.dk\/wp-content\/uploads\/2025\/08\/Livskvalitet-og-medansvar19-600x607.jpg 600w, https:\/\/jegharkraeft.dk\/wp-content\/uploads\/2025\/08\/Livskvalitet-og-medansvar19-297x300.jpg 297w, https:\/\/jegharkraeft.dk\/wp-content\/uploads\/2025\/08\/Livskvalitet-og-medansvar19-768x777.jpg 768w\" sizes=\"auto, (max-width: 960px) 100vw, 960px\" \/><\/figure>\n\n\n\n<p class=\"wp-block-paragraph\">For many, a cancer diagnosis starts with a sense of <a href=\"https:\/\/jegharkraeft.dk\/ansvar-og-kontroltab\/\">loss of control<\/a>. Management is handed over to a healthcare system built around efficiency, guidelines, and cancer pathways. The goal is to ensure everyone receives the best-documented treatment. But in this standardized approach, a gap inevitably arises \u2013 a distance between the system&#8217;s protocols and the individual&#8217;s unique life situation, fears, and personal values.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">What carries the most weight? A statistical improvement in five-year survival of a few percentage points, or the preservation of quality of life here and now?<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Especially for people who have already lived a long life, or for those who fear the consequences of aggressive treatment, this choice is not a given. When the system&#8217;s offerings do not align with one&#8217;s own convictions, one is left in a dilemma, having to either accept a treatment they are uncomfortable with or take full responsibility for finding another path.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">See also <a href=\"https:\/\/jegharkraeft.dk\/ansvar-og-kontroltab\/\">Responsibility and loss of control<\/a><\/p>\n\n\n\n<h2 class=\"wp-block-heading\"><span class=\"ez-toc-section\" id=\"Experience_in_figures\"><\/span>Experience in figures<span class=\"ez-toc-section-end\"><\/span><\/h2>\n\n\n\n<figure class=\"wp-block-image size-full is-resized\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"1024\" src=\"https:\/\/jegharkraeft.dk\/wp-content\/uploads\/2025\/08\/Livskvalitet-og-medansvar12.png\" alt=\"Livskvalitet og medansvar symboliseret ved en kvinde der st\u00e5r med et kompas i h\u00e5nden foran to veje.\" class=\"wp-image-17932\" style=\"object-fit:cover;width:150px;height:150px\" srcset=\"https:\/\/jegharkraeft.dk\/wp-content\/uploads\/2025\/08\/Livskvalitet-og-medansvar12.png 1024w, https:\/\/jegharkraeft.dk\/wp-content\/uploads\/2025\/08\/Livskvalitet-og-medansvar12-300x300.png 300w, https:\/\/jegharkraeft.dk\/wp-content\/uploads\/2025\/08\/Livskvalitet-og-medansvar12-100x100.png 100w, https:\/\/jegharkraeft.dk\/wp-content\/uploads\/2025\/08\/Livskvalitet-og-medansvar12-600x600.png 600w, https:\/\/jegharkraeft.dk\/wp-content\/uploads\/2025\/08\/Livskvalitet-og-medansvar12-150x150.png 150w, https:\/\/jegharkraeft.dk\/wp-content\/uploads\/2025\/08\/Livskvalitet-og-medansvar12-768x768.png 768w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><\/figure>\n\n\n\n<p class=\"has-custom-sort-tekst-color has-text-color has-link-color wp-elements-f1fce25f579cdcae2178050f67dc7a47 wp-block-paragraph\">This gap is not just a feeling. <a href=\"https:\/\/jegharkraeft.dk\/spoergeskemaundersoegelse\/\">A questionnaire survey<\/a> titled: Choice of cancer treatment, conducted in 2025 among 177 cancer patients, paints a clear picture of widespread frustration and a desire for a different approach. [14, 16]<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">A widespread desire for a different path<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">The survey shows that 39% have fully or partially opted out of the recommended conventional treatment. A further 9% have considered it but did not dare to take the step. For 65.5% of those who opted out, the primary reason is a well-founded fear of side effects and ruined quality of life.<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">The experience of pressure and lack of information<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">Almost half (48.8%) have experienced some form of pressure to follow the standard treatment. At the same time, over 40% do not feel sufficiently informed to make a real choice. One respondent expresses it this way: &#8220;I would have said no to radiation if I had to do it over. Did not get enough information about side effects at all &#8230; They downplayed the radiation totally!&#8221;<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">A closed door for dialogue<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">Many cancer patients want to take an active part in their process by including diet, supplements, or other complementary methods. Nevertheless, only 19.3% experience the system as genuinely supportive. Almost a quarter (22.7%) meet a directly judgmental attitude.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Another respondent says: &#8220;Alternative treatment &#8211; even supplements &#8211; has been a complete taboo with the doctors I have met.&#8221;<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">These experiences show that many are not just passive recipients, but active and critical players who demand a dialogue that the system is often not geared for.<\/p>\n\n\n\n<h2 class=\"wp-block-heading\"><span class=\"ez-toc-section\" id=\"The_systems_inherent_barriers\"><\/span>The system&#8217;s inherent barriers<span class=\"ez-toc-section-end\"><\/span><\/h2>\n\n\n\n<figure class=\"wp-block-image size-full is-resized\"><img loading=\"lazy\" decoding=\"async\" width=\"767\" height=\"760\" src=\"https:\/\/jegharkraeft.dk\/wp-content\/uploads\/2025\/08\/Livskvalitet-og-medansvar7.jpg\" alt=\"Livskvalitet og medansvar symboliseret ved en mand p\u00e5 en minipram alene i et stort hav.\" class=\"wp-image-17925\" style=\"object-fit:cover;width:150px;height:150px\" srcset=\"https:\/\/jegharkraeft.dk\/wp-content\/uploads\/2025\/08\/Livskvalitet-og-medansvar7.jpg 767w, https:\/\/jegharkraeft.dk\/wp-content\/uploads\/2025\/08\/Livskvalitet-og-medansvar7-100x100.jpg 100w, https:\/\/jegharkraeft.dk\/wp-content\/uploads\/2025\/08\/Livskvalitet-og-medansvar7-600x595.jpg 600w, https:\/\/jegharkraeft.dk\/wp-content\/uploads\/2025\/08\/Livskvalitet-og-medansvar7-300x297.jpg 300w, https:\/\/jegharkraeft.dk\/wp-content\/uploads\/2025\/08\/Livskvalitet-og-medansvar7-150x150.jpg 150w\" sizes=\"auto, (max-width: 767px) 100vw, 767px\" \/><\/figure>\n\n\n\n<p class=\"wp-block-paragraph\">The problem is rarely ill will on the part of the individual doctor, but rather a system with built-in barriers that favor certain types of treatment and information.<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Narrow view of evidence<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">The system weights evidence from large, pharmaceutical studies highest. This creates a barrier for, for example, effective, non-patentable treatments.<\/p>\n\n\n\n<p class=\"has-custom-sort-tekst-color has-text-color has-link-color wp-elements-76b260b70d20f780d97bbce26445bee4 wp-block-paragraph\">A striking example is the <a href=\"https:\/\/sundhedspolitisktidsskrift.dk\/nyheder\/sundhedspolitik\/10439-opsigtsvaekkende-studie-traening-kan-matche-effekten-af-moderne-kraeftmedicin.html\" target=\"_blank\" rel=\"noopener\">CHALLENGE study<\/a> from 2025, which showed that a targeted exercise program for colon cancer patients who had surgery could significantly improve survival \u2013 on par with expensive medicine. Nevertheless, such an effort struggles to be implemented because it is neither a pill nor a machine and therefore &#8220;falls between two stools.&#8221; [1]<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Surrogate endpoints over quality of life<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">A significant portion of new cancer drugs are approved based on so-called surrogate endpoints, such as a tumor shrinking for a period.<\/p>\n\n\n\n<p class=\"has-custom-sort-tekst-color has-text-color has-link-color wp-elements-87e030bfb7062f45b17a121a9405e3fc wp-block-paragraph\">A large analysis in the journal <a href=\"http:\/\/Kun hver tredje kr\u00e6ftmedicin i afsluttende fors\u00f8g giver patienter l\u00e6ngere liv eller bedre livskvalitet\">JAMA Oncology<\/a> has previously pointed out that only about one-third of new cancer drugs tested in final phases can actually document that patients live longer or have a meaningfully better quality of life. This raises a critical question as to whether the treatment benefits the patient or just the statistics. [2]<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Underestimating the patient&#8217;s role<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">Research clearly shows that when patients are actively involved in decisions about their treatment \u2013 a process called shared decision-making \u2013 their satisfaction increases, and they are more likely to follow the chosen plan.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Nevertheless, the experiences from the study strangely show that this form of partnership is often missing, and that the conversation primarily concerns informing about a predetermined protocol. [4]<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">See also <a href=\"https:\/\/jegharkraeft.dk\/placebo-nocebo-effekt\/\">Placebo and nocebo effect<\/a><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">See also <a href=\"https:\/\/jegharkraeft.dk\/det-skal-foeles-rigtigt-beslutningen\/\">It must feel right<\/a><\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Psychological importance of control<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">Psychological research into the sense of control shows that people who feel they have some control over their life situation cope better with crises such as serious illness.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Whereas, when the healthcare system unintentionally reduces the individual to a passive recipient, there is a risk of undermining this important psychological resource, which can affect both mental well-being and potentially also the physical process. [5]<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">See also <a href=\"https:\/\/jegharkraeft.dk\/placebo-nocebo-effekt\/\">Placebo and nocebo effect<\/a><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">See also <a href=\"https:\/\/jegharkraeft.dk\/ansvar-og-kontroltab\/\">Responsibility and loss of control<\/a><\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Digital information bias<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">In a time when many seek knowledge online, it is a serious barrier that digital tools can have an inherent slant. A test of the A.I. service Gemini showed that when asked about complementary treatment, it primarily referred to official sources that directly warn against the approaches, and systematically excluded recognized, independent information sites. This reinforces the system&#8217;s existing bias and makes it decidedly difficult to find nuanced information. [11]<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">See also <a href=\"https:\/\/jegharkraeft.dk\/gemini-censurerer\">Gemini censors<\/a><\/p>\n\n\n\n<h2 class=\"wp-block-heading\"><span class=\"ez-toc-section\" id=\"Taking_shared_responsibility\"><\/span>Taking shared responsibility<span class=\"ez-toc-section-end\"><\/span><\/h2>\n\n\n\n<figure class=\"wp-block-image size-full is-resized\"><img loading=\"lazy\" decoding=\"async\" width=\"865\" height=\"853\" src=\"https:\/\/jegharkraeft.dk\/wp-content\/uploads\/2025\/08\/Livskvalitet-og-medansvar14.jpg\" alt=\"Livskvalitet og medansvar symboliseret ved hvid sommerfugl med sorte tegninger. Baggrund bl\u00e5t med lysere bl\u00e5 prikker, der danner lodrette streger.\" class=\"wp-image-17934\" style=\"object-fit:cover;width:150px;height:150px\" srcset=\"https:\/\/jegharkraeft.dk\/wp-content\/uploads\/2025\/08\/Livskvalitet-og-medansvar14.jpg 865w, https:\/\/jegharkraeft.dk\/wp-content\/uploads\/2025\/08\/Livskvalitet-og-medansvar14-100x100.jpg 100w, https:\/\/jegharkraeft.dk\/wp-content\/uploads\/2025\/08\/Livskvalitet-og-medansvar14-600x592.jpg 600w, https:\/\/jegharkraeft.dk\/wp-content\/uploads\/2025\/08\/Livskvalitet-og-medansvar14-300x296.jpg 300w, https:\/\/jegharkraeft.dk\/wp-content\/uploads\/2025\/08\/Livskvalitet-og-medansvar14-768x757.jpg 768w\" sizes=\"auto, (max-width: 865px) 100vw, 865px\" \/><\/figure>\n\n\n\n<p class=\"wp-block-paragraph\">Taking shared responsibility is not about turning your back on the conventional system, but about insisting on your right to be an equal partner in your own process. It is about making an informed choice that is right for you, based on a balance of all factors: statistics, risks, quality of life, and personal values.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Preparation:<\/strong> <\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Familiarize yourself with your diagnosis and ask the doctor critical questions. What is the real, personal benefit of the treatment? What are the most common late effects? For they are far from always trivial.<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Use your right:<\/strong> <\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>By law, you have the right to informed consent, which includes the right to say no \u2013 but which, by its very nature, necessitates that you are properly and correctly informed.<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">Ask for time to reflect, and preferably bring a companion to all important conversations.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Seek knowledge and community:<\/strong> <\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Find reliable sources of information and talk to others in the same situation. Communities can provide invaluable support. From here, experiences are typically shared that can further supplement the doctor&#8217;s information.<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Find your standpoint:<\/strong> <\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Based on the knowledge you gather, you must assess what is needed for you to feel most secure and best ensure a dignified life ahead.<\/li>\n\n\n\n<li>For some, it is to gratefully accept the entire conventional package.<br>For others, it requires a more holistic and complementary approach.<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Your <\/strong><a href=\"https:\/\/jegharkraeft.dk\/beslutningen\/\">decision<\/a><strong>:<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Be aware that no matter what your conclusion may be, it is a choice. And you must make it. And it must feel right, so that you additionally get the full benefit of the placebo effect.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">See also <a href=\"https:\/\/jegharkraeft.dk\/placebo-nocebo-effekt\/\">Placebo and nocebo effect<\/a><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">See also <a href=\"https:\/\/jegharkraeft.dk\/predict\">Predict<\/a><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">See also <a href=\"https:\/\/jegharkraeft.dk\/straleskader-senfolger\/\">Radiation damage and late effects<\/a><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">See also <a href=\"https:\/\/jegharkraeft.dk\/minimer-kemo-1\">Side effects Chemo Minimize<\/a><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">See also <a href=\"https:\/\/jegharkraeft.dk\/beslutningen\">The decision<\/a> (about choice of treatment)<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">See also <a href=\"https:\/\/jegharkraeft.dk\/kraeft-behandlinger\/\">Treatments<\/a><\/p>\n\n\n\n<h2 class=\"wp-block-heading\"><span class=\"ez-toc-section\" id=\"Building_a_bridge\"><\/span>Building a bridge<span class=\"ez-toc-section-end\"><\/span><\/h2>\n\n\n\n<figure class=\"wp-block-image size-full is-resized\"><img loading=\"lazy\" decoding=\"async\" width=\"850\" height=\"850\" src=\"https:\/\/jegharkraeft.dk\/wp-content\/uploads\/2025\/08\/Livskvalitet-og-medansvar3.jpg\" alt=\"Livskvalitet og medansvar symboliseret ved et spil til tovv\u00e6rk fra en sejlb\u00e5d.\" class=\"wp-image-17929\" style=\"object-fit:cover;width:150px;height:150px\" srcset=\"https:\/\/jegharkraeft.dk\/wp-content\/uploads\/2025\/08\/Livskvalitet-og-medansvar3.jpg 850w, https:\/\/jegharkraeft.dk\/wp-content\/uploads\/2025\/08\/Livskvalitet-og-medansvar3-300x300.jpg 300w, https:\/\/jegharkraeft.dk\/wp-content\/uploads\/2025\/08\/Livskvalitet-og-medansvar3-100x100.jpg 100w, https:\/\/jegharkraeft.dk\/wp-content\/uploads\/2025\/08\/Livskvalitet-og-medansvar3-600x600.jpg 600w, https:\/\/jegharkraeft.dk\/wp-content\/uploads\/2025\/08\/Livskvalitet-og-medansvar3-150x150.jpg 150w, https:\/\/jegharkraeft.dk\/wp-content\/uploads\/2025\/08\/Livskvalitet-og-medansvar3-768x768.jpg 768w\" sizes=\"auto, (max-width: 850px) 100vw, 850px\" \/><\/figure>\n\n\n\n<p class=\"wp-block-paragraph\">To bridge the gap between the cancer patient and the system, changes are required on several levels:<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">To politicians, hospitals, and patient associations<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Recognize and fund:<\/strong> <\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Well-documented, non-medical interventions such as <a href=\"https:\/\/jegharkraeft.dk\/motion\/\">exercise<\/a> and <a href=\"https:\/\/jegharkraeft.dk\/ernaering-kost\/\">dietary guidance<\/a> as an <a href=\"https:\/\/jegharkraeft.dk\/alternative-oversigt\/\">integrated part of cancer treatment<\/a>. Create interest in and support independent research into complementary methods and <a href=\"https:\/\/jegharkraeft.dk\/repurposed-drugs\/\">repurposed drugs<\/a>. [18]<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Create an open culture:<\/strong> <\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Ensure curiosity and knowledge sharing in hospitals, where dialogue on integrative and <a href=\"https:\/\/jegharkraeft.dk\/alternative-oversigt\/\">complementary initiatives<\/a> should be a natural part of the conversation.<\/li>\n\n\n\n<li>Train healthcare professionals in the subject and allocate the necessary time for difficult conversations about doubt, fear, and quality of life. <\/li>\n\n\n\n<li>Collect precious information about what individual patients supplement their treatment with, why, and the subjective and objective effects of these measures. Learn from departments, such as Vejle Hospital, that already practice a patient-centered approach. [8]<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Be a stronger voice:<\/strong> <\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Recognize patients&#8217; desire to be viewed as a whole that must function as one, and not as parts to be patched in isolation. [6, 15, 16]<\/li>\n\n\n\n<li class=\"has-custom-sort-tekst-color has-text-color has-link-color wp-elements-65d0dd66257bfbf32d1aec6240b69140\">Take up the challenge and listen to the members who call for a more open approach. Patient associations \u2013 including, not least, <a href=\"https:\/\/jegharkraeft.dk\/kraeftens-bekaempelse\/\">the Danish Cancer Society<\/a>, which has the necessary financial muscle \u2013 should push for more research into integrative and complementary treatments. Not least repurposed drugs. [6]<\/li>\n\n\n\n<li>Patient associations should act as a critical counterweight to the system, rather than primarily being an echo of its official guidelines. It is evident that this is what their members, the patients, want.<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>It is \u2013 and should be possible:<\/strong><\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li class=\"has-custom-sort-tekst-color has-text-color has-link-color wp-elements-0f193ad08b4469182370a17a94953e38\">That an open dialogue about complementary methods is possible can be seen in departments like the Cancer Department at Vejle Hospital. Here, a culture has been created where patients&#8217; wishes are heard, reflecting a widespread need. Just as the patient is met with a folder: <a href=\"https:\/\/ipaper.ipapercms.dk\/regionsyddanmark\/sygehus_lillebaelt\/digital_post__faelles_bilag\/127502\/\" target=\"_blank\" rel=\"noopener\">&#8220;Do you take supplements? \u2013 That is perfectly fine with us.&#8221;<\/a> [8, 17]<\/li>\n<\/ul>\n\n\n\n<ul class=\"wp-block-list\">\n<li class=\"has-custom-sort-tekst-color has-text-color has-link-color wp-elements-23b531cb73eb62152602b5a68c9ddbd0\">A major report from Trygfonden, <a href=\"https:\/\/danskepatienter.dk\/files\/media\/document\/Sundhedsv%C3%A6senet_if%C3%B8lge-danskerne_web_0.pdf\" target=\"_blank\" rel=\"noopener\">&#8220;The Healthcare System According to the Danes,<\/a>&#8221; has previously shown that nearly eight out of ten Danes want to be able to talk to their doctor about alternative options. Is it not time they were heard? [6]<\/li>\n<\/ul>\n\n\n\n<h2 class=\"wp-block-heading\"><span class=\"ez-toc-section\" id=\"Conclusion\"><\/span>Conclusion<span class=\"ez-toc-section-end\"><\/span><\/h2>\n\n\n\n<figure class=\"wp-block-image size-full is-resized\"><img loading=\"lazy\" decoding=\"async\" width=\"964\" height=\"964\" src=\"https:\/\/jegharkraeft.dk\/wp-content\/uploads\/2025\/08\/Livskvalitet-og-medansvar8.jpg\" alt=\"Livskvalitet og medansvar symboliseret ved en sejlskib med baggrund i psykedeliske farver.\" class=\"wp-image-17924\" style=\"object-fit:cover;width:150px;height:150px\" srcset=\"https:\/\/jegharkraeft.dk\/wp-content\/uploads\/2025\/08\/Livskvalitet-og-medansvar8.jpg 964w, https:\/\/jegharkraeft.dk\/wp-content\/uploads\/2025\/08\/Livskvalitet-og-medansvar8-300x300.jpg 300w, https:\/\/jegharkraeft.dk\/wp-content\/uploads\/2025\/08\/Livskvalitet-og-medansvar8-100x100.jpg 100w, https:\/\/jegharkraeft.dk\/wp-content\/uploads\/2025\/08\/Livskvalitet-og-medansvar8-600x600.jpg 600w, https:\/\/jegharkraeft.dk\/wp-content\/uploads\/2025\/08\/Livskvalitet-og-medansvar8-150x150.jpg 150w, https:\/\/jegharkraeft.dk\/wp-content\/uploads\/2025\/08\/Livskvalitet-og-medansvar8-768x768.jpg 768w\" sizes=\"auto, (max-width: 964px) 100vw, 964px\" \/><\/figure>\n\n\n\n<p class=\"wp-block-paragraph\">The journey through cancer is deeply personal. The desire to be met with respect, responsiveness, and recognition is universal.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">The experiences gathered here point to an acute need to move away from a standard model and toward a genuine partnership between the cancer patient and the healthcare system. Because ultimately, the goal is not only to prolong life, but to ensure that the life lived is characterized by dignity, meaning, and quality. A life that is not just lived, but is worth living.<\/p>\n\n\n\n<p class=\"has-custom-sort-tekst-color has-text-color has-link-color wp-elements-6ff9cebc206d418f8cf5c7bc72298c6f wp-block-paragraph\"><strong>Read also the Op-ed<\/strong>: <a href=\"https:\/\/jyllands-posten.dk\/debat\/kronik\/ECE18423307\/der-er-en-kloeft-mellem-systemet-og-patienten-gaelder-det-om-at-overleve-eller-om-at-have-livskvalitet-det-er-vi-ikke-altid-enige-om\/\" target=\"_blank\" rel=\"noopener\">There is a gap between the system and the patient: Is it about surviving or about having quality of life?<\/a> in Jyllands-Posten (Jyllands-Posten, 2025) (Danish Language)<\/p>\n\n\n\n<h2 class=\"wp-block-heading\"><span class=\"ez-toc-section\" id=\"Appendix_Questionnaire_survey\"><\/span>Appendix:<a href=\"Appendix: Questionnaire survey\"> <\/a><a href=\"https:\/\/jegharkraeft.dk\/spoergeskemaundersoegelse\/\">Questionnaire survey<\/a><span class=\"ez-toc-section-end\"><\/span><\/h2>\n\n\n\n<figure class=\"wp-block-image size-full is-resized\"><img loading=\"lazy\" decoding=\"async\" width=\"682\" height=\"676\" src=\"https:\/\/jegharkraeft.dk\/wp-content\/uploads\/2025\/10\/Spoergeskemaundesoegelse4.jpg\" alt=\"Sp\u00f8rgeskamaunders\u00f8gelse symboliseret ved en masse pile i r\u00f8d, orange og gr\u00f8n-\" class=\"wp-image-22243\" style=\"object-fit:cover;width:150px;height:150px\" srcset=\"https:\/\/jegharkraeft.dk\/wp-content\/uploads\/2025\/10\/Spoergeskemaundesoegelse4.jpg 682w, https:\/\/jegharkraeft.dk\/wp-content\/uploads\/2025\/10\/Spoergeskemaundesoegelse4-100x100.jpg 100w, https:\/\/jegharkraeft.dk\/wp-content\/uploads\/2025\/10\/Spoergeskemaundesoegelse4-600x595.jpg 600w, https:\/\/jegharkraeft.dk\/wp-content\/uploads\/2025\/10\/Spoergeskemaundesoegelse4-300x297.jpg 300w, https:\/\/jegharkraeft.dk\/wp-content\/uploads\/2025\/10\/Spoergeskemaundesoegelse4-150x150.jpg 150w\" sizes=\"auto, (max-width: 682px) 100vw, 682px\" \/><\/figure>\n\n\n\n<p class=\"has-custom-sort-tekst-color has-text-color has-link-color wp-elements-55a8f4ebda121fa95e550cb549ceb0e1 wp-block-paragraph\">Data originates, in part, from the aforementioned online questionnaire survey conducted in May 2025. A total of 177 people with a cancer diagnosis completed the questionnaire, which was distributed via social media and the information site.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">The survey is fully anonymous. It is acknowledged that this distribution method can (and likely will) lead to selection bias. The results should therefore not be viewed as statistically representative of all Danish cancer patients, but as a strong indication of the challenges experienced by a significant group.<\/p>\n\n\n\n<p class=\"has-custom-sort-tekst-color has-text-color has-link-color wp-elements-6f5b3e7bd9d4532e4d82f9c2f312bd56 wp-block-paragraph\">See all data from <a href=\"https:\/\/jegharkraeft.dk\/spoergeskemaundersoegelse\/\">the Questionnaire Survey<\/a><\/p>\n\n\n\n<p class=\"has-custom-sort-tekst-color has-text-color has-link-color wp-elements-d36f03e86e06ae21ae191d91d6565d1a wp-block-paragraph\"><a href=\"#menu\">(to menu)<\/a><\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Links<\/h4>\n\n\n\n<p class=\"has-custom-sort-tekst-color has-text-color has-link-color wp-elements-2a7ec21778d424228d0ec419cf49b70a wp-block-paragraph\">1] <a href=\"https:\/\/sundhedspolitisktidsskrift.dk\/nyheder\/sundhedspolitik\/10439-opsigtsvaekkende-studie-traening-kan-matche-effekten-af-moderne-kraeftmedicin.html\" target=\"_blank\" rel=\"noopener\">Sensational study: Exercise can match the effect of modern cancer medicine<\/a> (Sundhedspolitisk Tidsskrift, 2025) (Danish Language)<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li><strong>Content:<\/strong> Mention of the CHALLENGE study, which shows that a three-year exercise program for colon cancer patients who had surgery can improve survival on par with expensive, modern cancer medicine, which underscores the potential of non-medical treatments.<\/li>\n<\/ul>\n\n\n\n<p class=\"has-custom-sort-tekst-color has-text-color has-link-color wp-elements-65ae94d5c793c36998549d8229d1f678 wp-block-paragraph\">[2] <a href=\"https:\/\/sundhedspolitisktidsskrift.dk\/nyheder\/sundhedspolitik\/10441-kun-hver-tredje-fase-iii-forsog-med-kraeftlaegemidler-viser-gevinst-pa-overlevelse-eller-livskvalitet.html?fbclid=IwY2xjawL6FZJleHRuA2FlbQIxMQABHgyHdqo7HrKwZBYMM2nvywcqvJW3c6ykNvzi_QsiekZgXth4rBMbDssesud2_aem_qo_0HcUZwTbFP_QW6Ed30w\" target=\"_blank\" rel=\"noopener\">Only one in three cancer drugs in final trials gives patients longer life or better quality of life <\/a>(Sundhedspolitisk Tidsskrift, 2025) (Danish Language)<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li><strong>Content:<\/strong> Based on an analysis from JAMA Oncology, the article highlights that many new cancer drugs are approved based on surrogate endpoints (e.g., tumor reduction) without documented effect on survival or quality of life.<\/li>\n<\/ul>\n\n\n\n<p class=\"has-custom-sort-tekst-color has-text-color has-link-color wp-elements-3043311a258fa41c112fc5bd93446b16 wp-block-paragraph\">[3] <a href=\"https:\/\/pubmed.ncbi.nlm.nih.gov\/20818875\/\" target=\"_blank\" rel=\"noopener\">Early palliative care for patients with metastatic non-small-cell lung cancer<\/a> (PubMed, 2010)<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li><strong>Content:<\/strong> A landmark study that demonstrated that patients with advanced lung cancer, who received early palliative and supportive conversations, experienced significantly better quality of life and lived an average of almost three months longer.<\/li>\n<\/ul>\n\n\n\n<p class=\"has-custom-sort-tekst-color has-text-color has-link-color wp-elements-1a7451070818a2e48fc2ab1c4f7e8084 wp-block-paragraph\">[4] <a href=\"https:\/\/www.sundhed.dk\/sundhedsfaglig\/information-til-praksis\/nordjylland\/almen-praksis\/nord-kap\/uth\/patientsikkerhedsprojekter-og-rapporter\/patientinddragelse\/faelles-beslutningstagen\/\" target=\"_blank\" rel=\"noopener\">Shared decision-making <\/a>(Sundhed.dk, 2021) (Danish Language)<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li><strong>Content:<\/strong> Denmark&#8217;s official health portal explains here how &#8220;shared decision-making&#8221; involves patients in important choices about their own treatment course. The method is central when there are several possible paths to take.<\/li>\n<\/ul>\n\n\n\n<p class=\"has-custom-sort-tekst-color has-text-color has-link-color wp-elements-f7db5def21b3e5b035462005850b9fa3 wp-block-paragraph\">[5] <a href=\"https:\/\/www.sciencedirect.com\/science\/article\/abs\/pii\/S1462388917300455\" target=\"_blank\" rel=\"noopener\">Locus of control, quality of life, anxiety, and depression in cancer patients<\/a> (ScienceDirect, 2017)<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li><strong>Content:<\/strong> A study confirming the strong connection between &#8220;the sense of control&#8221; and the psychological well-being of cancer patients. The results show that an experience of internal control is associated with higher quality of life as well as lower levels of anxiety and depression.<\/li>\n<\/ul>\n\n\n\n<p class=\"has-custom-sort-tekst-color has-text-color has-link-color wp-elements-3866027df92a592ac754fdb182025f76 wp-block-paragraph\">[6] <a href=\"https:\/\/danskepatienter.dk\/files\/media\/document\/Sundhedsv%C3%A6senet_if%C3%B8lge-danskerne_web_0.pdf\" target=\"_blank\" rel=\"noopener\">The healthcare system according to the Danes<\/a> (Trygfonden &amp; Danske Patienter, 2016) (Danish Language)<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li><strong>Content:<\/strong> A comprehensive report uncovering the Danes&#8217; relationship with the healthcare system. It shows, among other things, that a large majority (almost 8 out of 10) want to be able to talk openly with their doctor about alternative treatment options.<\/li>\n<\/ul>\n\n\n\n<p class=\"has-custom-sort-tekst-color has-text-color has-link-color wp-elements-4c0420e673b26d44fa9a2a4545053c7c wp-block-paragraph\">[7] <a href=\"https:\/\/medicinraadet.dk\/anbefalinger-og-vejledninger?page=&amp;order=updated%20desc&amp;take=&amp;currentpageid=1095&amp;database=1095&amp;secondary=1096&amp;category=&amp;archived=0&amp;highlight=&amp;q=&amp;period=0\" target=\"_blank\" rel=\"noopener\">Recommendations and guidelines<\/a> (Medicinr\u00e5det) (Danish Language)<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li><strong>Content:<\/strong> Official portal for the national clinical guidelines and instructions, which form the basis for standard treatment in the Danish healthcare system.<\/li>\n<\/ul>\n\n\n\n<p class=\"has-custom-sort-tekst-color has-text-color has-link-color wp-elements-3874015c0eee143b4ffba7fcc81cb840 wp-block-paragraph\">[8] <a href=\"https:\/\/sygehuslillebaelt.dk\/afdelinger\/vejle-sygehus\/onkologisk-afdeling\/patienter-og-parorende\/tilbud-til-dig-som-patient\/samtale-om-komplementaer-og-alternativ-behandling\" target=\"_blank\" rel=\"noopener\">Dialogue on complementary and alternative treatment<\/a> (Sygehus Lilleb\u00e6lt) (Danish Language)<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li><strong>Content:<\/strong> Information from the hospital that recognizes patients&#8217; use of complementary treatment. The material encourages an open dialogue and critical sense regarding the choice of practitioners and methods.<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Internal links from jegharkraeft.dk<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">[9] <a href=\"https:\/\/jegharkraeft.dk\/behandlingsvejledning\">The treatment guidelines<\/a> (Concerning Denmark)<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li><strong>Content:<\/strong> Article explaining what the official treatment guidelines are and how they are used in practice, including their strengths and limitations in relation to individual treatment.<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">[10] <a href=\"https:\/\/jegharkraeft.dk\/ansvar-og-kontroltab\/\">Responsibility and loss of control<\/a><\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li><strong>Content:<\/strong> Highlights the paradox that one has full legal responsibility but is often deprived of responsibility for one&#8217;s own health in the encounter with the system. The article encourages regaining control through knowledge.<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">[11] <a href=\"https:\/\/jegharkraeft.dk\/gemini-censurerer\">Gemini censors<\/a><\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li><strong>Content:<\/strong> Shows with a concrete example how artificial intelligence can have a slant that favors conventional treatment and omits information about integrative and complementary and alternative methods.<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">[12] <a href=\"https:\/\/jegharkraeft.dk\/evidens\">Evidence vs. Experience<\/a><\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li><strong>Content:<\/strong> A discussion about the balance between scientific evidence and experience-based knowledge. The article argues for the value of both in a holistic treatment course.<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">[13] <a href=\"https:\/\/jegharkraeft.dk\/beslutningen\">The decision <\/a><\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li><strong>Content:<\/strong> Focuses on the importance of making an informed choice that you believe in yourself to regain the sense of control. A conscious choice, regardless of direction, provides inner peace and strength.<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">[14] <a href=\"https:\/\/jegharkraeft.dk\/spoergeskemaundersoegelse-1\/\">Description of questionnaire survey<\/a> (Danish Language)<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li><strong>Content:<\/strong> In-depth review of the questionnaire survey that forms the data basis for the article. Here you will find the method used, a detailed presentation of the results, and an analysis of the cancer patients&#8217; experiences.<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">[18] <a href=\"https:\/\/jegharkraeft.dk\/repurposed-drugs\/\">Repurposed drugs<\/a><\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li><strong>Content:<\/strong> Review of the different repurposed drugs that have shown an effect in trials in connection with cancer treatment.<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Other links<\/strong><\/p>\n\n\n\n<p class=\"has-custom-sort-tekst-color has-text-color has-link-color wp-elements-3dad264139f77acf8e0aaa10fc7b8f5a wp-block-paragraph\">[15] <a href=\"https:\/\/jyllands-posten.dk\/debat\/kronik\/ECE18423307\/der-er-en-kloeft-mellem-systemet-og-patienten-gaelder-det-om-at-overleve-eller-om-at-have-livskvalitet-det-er-vi-ikke-altid-enige-om\/\" target=\"_blank\" rel=\"noopener\">There is a gap between the system and the patient: Is it about surviving or about having quality of life?<\/a> (Jyllands-Posten, 2025) (Danish Language)<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li><strong>Content:<\/strong> Op-ed published in Jyllands-Posten arguing, based on a personal cancer story, that quality of life and shared responsibility should be weighted as heavily as survival statistics. It calls for a shift in focus to ensure the patient&#8217;s values remain at the center.<\/li>\n<\/ul>\n\n\n\n<p class=\"has-custom-sort-tekst-color has-text-color has-link-color wp-elements-b2ad6bd2496215f2a86fe2d74919cb80 wp-block-paragraph\">[16] <a href=\"https:\/\/jegharkraeft.dk\/spoergeskemaundersoegelse\/\">Questionnaire survey<\/a> (Choice of cancer treatment, 2025) (Danish Language)<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li><strong>Content:<\/strong> The actual survey, which remains open for research institutions wishing to take over and continue the study. It provides raw data on how patients navigate the choice between conventional and alternative paths and their experiences with the healthcare system.<\/li>\n<\/ul>\n\n\n\n<p class=\"has-custom-sort-tekst-color has-text-color has-link-color wp-elements-1a1bb06aaa5a2201858cb0dc17faa470 wp-block-paragraph\">[17] <a href=\"https:\/\/ipaper.ipapercms.dk\/regionsyddanmark\/sygehus_lillebaelt\/digital_post__faelles_bilag\/127502\/\" target=\"_blank\" rel=\"noopener\">Do you take supplements \u2013 That is perfectly fine with us<\/a> (Vejle Sygehus, folder) (Danish Language)<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li> <strong>Content:<\/strong> Patient information pamphlet from Vejle Hospital. It represents an open and supportive approach to patients&#8217; own initiatives, such as the use of dietary supplements, serving as a model for how the healthcare system can foster better dialogue and trust.<\/li>\n<\/ul>\n\n\n\n<p class=\"has-custom-sort-tekst-color has-text-color has-link-color wp-elements-2b0963c5de7d07142fbb8ea6898ea14b wp-block-paragraph\"><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Page created:<\/strong> October 7, 2025<\/p>\n\n\n\n<p class=\"has-text-align-center wp-block-paragraph\"><mark style=\"background-color:rgba(0, 0, 0, 0)\" class=\"has-inline-color has-custom-menu-links-color\">\u2764<\/mark><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong><em>What you read on I have Cancer is not a recommendation. Seek competent guidance.<\/em><\/strong><\/p>\n<\/div>\n<\/div>\n<div id=\"ez-toc-container\" class=\"ez-toc-v2_0_84 counter-hierarchy ez-toc-counter ez-toc-grey ez-toc-container-direction\">\n<div class=\"ez-toc-title-container\">\n<p class=\"ez-toc-title\" style=\"cursor:inherit\">Indhold<\/p>\n<span class=\"ez-toc-title-toggle\"><a href=\"#\" class=\"ez-toc-pull-right ez-toc-btn ez-toc-btn-xs ez-toc-btn-default ez-toc-toggle\" aria-label=\"Toggle Table of Content\"><span class=\"ez-toc-js-icon-con\"><span class=\"\"><span class=\"eztoc-hide\" style=\"display:none;\">Toggle<\/span><span class=\"ez-toc-icon-toggle-span\"><svg style=\"fill: #999;color:#999\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\" class=\"list-377408\" width=\"20px\" height=\"20px\" viewBox=\"0 0 24 24\" fill=\"none\"><path d=\"M6 6H4v2h2V6zm14 0H8v2h12V6zM4 11h2v2H4v-2zm16 0H8v2h12v-2zM4 16h2v2H4v-2zm16 0H8v2h12v-2z\" fill=\"currentColor\"><\/path><\/svg><svg style=\"fill: #999;color:#999\" class=\"arrow-unsorted-368013\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"10px\" height=\"10px\" viewBox=\"0 0 24 24\" version=\"1.2\" baseProfile=\"tiny\"><path d=\"M18.2 9.3l-6.2-6.3-6.2 6.3c-.2.2-.3.4-.3.7s.1.5.3.7c.2.2.4.3.7.3h11c.3 0 .5-.1.7-.3.2-.2.3-.5.3-.7s-.1-.5-.3-.7zM5.8 14.7l6.2 6.3 6.2-6.3c.2-.2.3-.5.3-.7s-.1-.5-.3-.7c-.2-.2-.4-.3-.7-.3h-11c-.3 0-.5.1-.7.3-.2.2-.3.5-.3.7s.1.5.3.7z\"\/><\/svg><\/span><\/span><\/span><\/a><\/span><\/div>\n<nav><ul class='ez-toc-list ez-toc-list-level-1 ' ><ul class='ez-toc-list-level-2' ><li class='ez-toc-heading-level-2'><a class=\"ez-toc-link ez-toc-heading-1\" href=\"https:\/\/jegharkraeft.dk\/en\/quality-of-life-and-shared-responsibility\/#Treatments\" >Treatments<\/a><\/li><\/ul><\/li><li class='ez-toc-page-1 ez-toc-heading-level-1'><a class=\"ez-toc-link ez-toc-heading-2\" href=\"https:\/\/jegharkraeft.dk\/en\/quality-of-life-and-shared-responsibility\/#Quality_of_life_and_shared_responsibility\" >Quality of life and shared responsibility<\/a><ul class='ez-toc-list-level-2' ><li class='ez-toc-heading-level-2'><a class=\"ez-toc-link ez-toc-heading-3\" href=\"https:\/\/jegharkraeft.dk\/en\/quality-of-life-and-shared-responsibility\/#The_gap_between_system_and_individual\" >The gap between system and individual<\/a><\/li><li class='ez-toc-page-1 ez-toc-heading-level-2'><a class=\"ez-toc-link ez-toc-heading-4\" href=\"https:\/\/jegharkraeft.dk\/en\/quality-of-life-and-shared-responsibility\/#Experience_in_figures\" >Experience in figures<\/a><\/li><li class='ez-toc-page-1 ez-toc-heading-level-2'><a class=\"ez-toc-link ez-toc-heading-5\" href=\"https:\/\/jegharkraeft.dk\/en\/quality-of-life-and-shared-responsibility\/#The_systems_inherent_barriers\" >The system&#8217;s inherent barriers<\/a><\/li><li class='ez-toc-page-1 ez-toc-heading-level-2'><a class=\"ez-toc-link ez-toc-heading-6\" href=\"https:\/\/jegharkraeft.dk\/en\/quality-of-life-and-shared-responsibility\/#Taking_shared_responsibility\" >Taking shared responsibility<\/a><\/li><li class='ez-toc-page-1 ez-toc-heading-level-2'><a class=\"ez-toc-link ez-toc-heading-7\" href=\"https:\/\/jegharkraeft.dk\/en\/quality-of-life-and-shared-responsibility\/#Building_a_bridge\" >Building a bridge<\/a><\/li><li class='ez-toc-page-1 ez-toc-heading-level-2'><a class=\"ez-toc-link ez-toc-heading-8\" href=\"https:\/\/jegharkraeft.dk\/en\/quality-of-life-and-shared-responsibility\/#Conclusion\" >Conclusion<\/a><\/li><li class='ez-toc-page-1 ez-toc-heading-level-2'><a class=\"ez-toc-link ez-toc-heading-9\" href=\"https:\/\/jegharkraeft.dk\/en\/quality-of-life-and-shared-responsibility\/#Appendix_Questionnaire_survey\" >Appendix: Questionnaire survey<\/a><\/li><\/ul><\/li><\/ul><\/nav><\/div>\n","protected":false},"excerpt":{"rendered":"<p>Treatments<\/p>\n","protected":false},"author":1,"featured_media":32735,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"_lmt_disableupdate":"","_lmt_disable":"","footnotes":""},"categories":[387],"tags":[],"class_list":["post-32736","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-treatment-decisions"],"modified_by":"Hanne Kj\u00e6r Uhlig","wpml_current_locale":"en_US","wpml_translations":[],"_links":{"self":[{"href":"https:\/\/jegharkraeft.dk\/en\/wp-json\/wp\/v2\/posts\/32736","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/jegharkraeft.dk\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/jegharkraeft.dk\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/jegharkraeft.dk\/en\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/jegharkraeft.dk\/en\/wp-json\/wp\/v2\/comments?post=32736"}],"version-history":[{"count":10,"href":"https:\/\/jegharkraeft.dk\/en\/wp-json\/wp\/v2\/posts\/32736\/revisions"}],"predecessor-version":[{"id":38705,"href":"https:\/\/jegharkraeft.dk\/en\/wp-json\/wp\/v2\/posts\/32736\/revisions\/38705"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/jegharkraeft.dk\/en\/wp-json\/wp\/v2\/media\/32735"}],"wp:attachment":[{"href":"https:\/\/jegharkraeft.dk\/en\/wp-json\/wp\/v2\/media?parent=32736"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/jegharkraeft.dk\/en\/wp-json\/wp\/v2\/categories?post=32736"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/jegharkraeft.dk\/en\/wp-json\/wp\/v2\/tags?post=32736"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}